so we saw the doctor...
Feb 18, 2012 17:41:41 GMT
Post by FMmom on Feb 18, 2012 17:41:41 GMT
We saw the pediatrician yesterday. Kaelin is 50.0 pounds (22.6 kg) and 51.75 inches (131 cm), giving her a BMI of 13.1, putting her in the "under the bottom 1 percentile".
Sigh.
The doctor showed me Kaelin's chart and she was the exact same weight one year ago. However, she's grown almost three inches since then, which means her weight has plummeted.
I mentioned the zoning out issues and the aches and pains. I told her that gastro doc is thinking that I need to add more foods into Kaelin's diet -- but I think Kaelin actually does better when I follow the FODMAPs diet more rigorously.
The thing that is so maddening is that since our gastro appt the week before, I've been very vigilant in the diet -- and every day, the scale showed a tiny improvement in her weight. (Typically I don't weigh Kaelin every day, but I really wanted to see if following the diet helped or hindered. It seemed to be helping...) However, on Valentine's Kaelin ate a lot of candy. The next morning she had dropped all the weight she had gained (slightly under one pound.) And there it remained for the next three mornings: exactly 50 pounds.
She is confused and concerned about Kaelin dropping weight so quickly when eating sugar.
We discussed Kaelin's diet and my concerns over the stomach pain that will not end. I use a ton of butter and cream, trying to up the calorie content without forcing her to eat more food. So I wonder about dairy. Kaelin has had blood tests and the skin prick test, looking for a dairy allergy. Last year we tried lactaid, but stopped it for some reason I cannot remember.
The doctor thought maybe Kaelin has a somewhat severe lactose intolerance and I didn't give her enough lactaid. So we're trying again. Now she gets to take five pills at every meal -- three pancreatic enzymes and two lactose enyzmes. Oh, and she needs to take some gas medicine to supplement the prilosec. And take Miralax several times a week to keep her system regular since dairy tends to constipate her.
She is also going to have a talk with the gastro doc to see if they can hone in on any answers. She wants a definitive diagnosis that I can take to the school to make sure they do everything possible for Kaelin.
She continues to believe that hypoglycemia is an issue for Kaelin, but isn't sure that a test will be able to diagnose it. I asked if just being skinny and having no reserves is different than hypoglycemia, and for all practical purposes, it's not all that different. The zoning out Kaelin experiences is probably related to blood sugar, not seizures. But it's something we'll monitor.
We go back in one month to see if there is any change in Kaelin's weight -- and to see if there is any more information after the Metabolics tests come in or the consult with the gastro doc.
With hope, we'll see some improvements over the next four weeks...
Sigh.
The doctor showed me Kaelin's chart and she was the exact same weight one year ago. However, she's grown almost three inches since then, which means her weight has plummeted.
I mentioned the zoning out issues and the aches and pains. I told her that gastro doc is thinking that I need to add more foods into Kaelin's diet -- but I think Kaelin actually does better when I follow the FODMAPs diet more rigorously.
The thing that is so maddening is that since our gastro appt the week before, I've been very vigilant in the diet -- and every day, the scale showed a tiny improvement in her weight. (Typically I don't weigh Kaelin every day, but I really wanted to see if following the diet helped or hindered. It seemed to be helping...) However, on Valentine's Kaelin ate a lot of candy. The next morning she had dropped all the weight she had gained (slightly under one pound.) And there it remained for the next three mornings: exactly 50 pounds.
She is confused and concerned about Kaelin dropping weight so quickly when eating sugar.
We discussed Kaelin's diet and my concerns over the stomach pain that will not end. I use a ton of butter and cream, trying to up the calorie content without forcing her to eat more food. So I wonder about dairy. Kaelin has had blood tests and the skin prick test, looking for a dairy allergy. Last year we tried lactaid, but stopped it for some reason I cannot remember.
The doctor thought maybe Kaelin has a somewhat severe lactose intolerance and I didn't give her enough lactaid. So we're trying again. Now she gets to take five pills at every meal -- three pancreatic enzymes and two lactose enyzmes. Oh, and she needs to take some gas medicine to supplement the prilosec. And take Miralax several times a week to keep her system regular since dairy tends to constipate her.
She is also going to have a talk with the gastro doc to see if they can hone in on any answers. She wants a definitive diagnosis that I can take to the school to make sure they do everything possible for Kaelin.
She continues to believe that hypoglycemia is an issue for Kaelin, but isn't sure that a test will be able to diagnose it. I asked if just being skinny and having no reserves is different than hypoglycemia, and for all practical purposes, it's not all that different. The zoning out Kaelin experiences is probably related to blood sugar, not seizures. But it's something we'll monitor.
We go back in one month to see if there is any change in Kaelin's weight -- and to see if there is any more information after the Metabolics tests come in or the consult with the gastro doc.
With hope, we'll see some improvements over the next four weeks...
