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Post by Charlie Arnold on Jan 13, 2012 17:15:28 GMT
Hypoglycemia never seems to appear in a list of symptoms about FM nly with HFI but the more I think about it the more it makes sense that it could. Meg has had lots of investigations recently and things are finally starting to make sense.
She struggles with school, going there, being on time, concentration, writing, keeping up, maths etc etc and I have had such a battle with the school to help. Now they are finally recognising there is a problem I can stop worrying about the fact that she has a problem and concentrate on why. Which brings me back to hypoglycemia.
she has had episodes where she has passed out, usually when she is ill anyway, but also struggles with sustained concentration and vigorous exercise and can go quite strange colours quite quickly. If I give her something to eat or a carton of milk she picks up. Now if ingested fructose is relying on glucose to pull it through the bowel does that mean then that all the glucose is used up and doesn't leave enough for the rest of the body to fuel itself on. Does this mean we need to top up the glucose levels, its no good using table sugar as that has fructose in it.
It makes sense that she just runs out of fuel. eg her teacher said this morning she wrote 1 to 9 perfectly, the right way round quickly. This afternoon in maths she started doing back to front numbers again. She is 9 now so she should be able to do them all the right way round.
Do other folk have any experience or ideas on this.
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Post by Charlie Arnold on Feb 7, 2012 17:26:33 GMT
Hi Lucky
This so makes sense to me, thankyou. I have tried the blood monitor but it was a few years ago and was very unsuccessful just in getting near her with it. she has had so many blood tests etc she is not good with needles so I need to build up slowly, she may be better now she is older. I bought one when she was nearly passing out alot and showing alot of symptoms that looked like hypoglycemia. The trouble is you do have to be careful (in England at least) of what tests you do unauthorised on your child or they start thinking you as a mother have mental health problems!! There is a wristwatch type device I saw advertised which I might look into again, it is to be worn at night and has an alarm which supposedly picks up a hypo, it didn't look too expensive so worth a try.
Her blood sugar must be yo-yoing alot since she started the fodmap diet so I do think I need to cut back. She is having an EEG in a few weeks time so I will keep her as reactive as I dare till then in the hope that it does show something up. She may be getting them at night for all we know, she wakes up so tired and drained in the morning even after a full nights sleep.
I am trying to think of things to give her as soon as she wakes up to maybe help her perk up, maybe a drink then she can snoozle a bit more while it works.
As you say, they have lots of problems before they diagnose a fructose problem, just because it so rare, then it is a process of elimination. We did think for a long time she had two separate problems going on but now, the more I speak to other parents in my situation the more it is looking as though it is all one condition, its just getting to the bottom of the solution.
I see on another post you tried lactose free milk, Meg was OK on the lactose breath test but maybe it is worth trying. I try to cut out all wheat but that is just too restrictive so I do use some better quality bread and crackers for ease. Once they have finished the epilepsy tests if we still are getting nowhere I might try an elimination diet again and take everything out then slowly add back in again.
Plus, I think I may print out your post if I may and show a copy to the school as I do think they think I have come off a different planet!!!!!
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Post by E's Mom on Jun 18, 2013 11:55:10 GMT
Hypoglycemia never seems to appear in a list of symptoms about FM nly with HFI but the more I think about it the more it makes sense that it could. Meg has had lots of investigations recently and things are finally starting to make sense. She struggles with school, going there, being on time, concentration, writing, keeping up, maths etc etc and I have had such a battle with the school to help. Now they are finally recognising there is a problem I can stop worrying about the fact that she has a problem and concentrate on why. Which brings me back to hypoglycemia. she has had episodes where she has passed out, usually when she is ill anyway, but also struggles with sustained concentration and vigorous exercise and can go quite strange colours quite quickly. If I give her something to eat or a carton of milk she picks up. Now if ingested fructose is relying on glucose to pull it through the bowel does that mean then that all the glucose is used up and doesn't leave enough for the rest of the body to fuel itself on. Does this mean we need to top up the glucose levels, its no good using table sugar as that has fructose in it. It makes sense that she just runs out of fuel. eg her teacher said this morning she wrote 1 to 9 perfectly, the right way round quickly. This afternoon in maths she started doing back to front numbers again. She is 9 now so she should be able to do them all the right way round. Do other folk have any experience or ideas on this. We just went through this with my 20 something daughter. After a bizzare string of health problems, she was finally diagnosed with Fructose intolerance. Once removing all things fructose from her diet, her body started coming around. But yet she's had experiences with almost passing out and foggy brain, even extremely low pulse. I finally went to spend the weekend with her and realized what was happening. When she has to deal with anything out of the ordinary, especially when she has some accidental fructose because she isn't thinking clearly and her body is screaming for sugar, her blood sugar level crashes. I suspected, as did you, that the stress of her body dealing with the fructose causes her to use up all glucose that had been in her system, leaving her horribly hypoglycemic. As this finally dawned on me, I ran to the store and got her some bottled water and Sweet Tarts candy. (It's main ingredient is dextrose (similar to glucose). After a few, she perked up quite a bit. From there, I got her to a Sushi restaurant, a fav of hers that has no fructose traps to fall into. Half way through the meal, I had my girl back, laughing, engaged, and a joy! An added benefit of sushi is the seaweed wrap. She read that it's a good source of vitamin C, without the fructose! Lord only knows what kind of health issues one may see because of the lack of that. I suggest, find sweet tarts, or glucose tabs and let them pop them like the candy they are. Not being diabetic, the body can handle the excess. It's the lack of sugar that keeps them from functioning. |
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Post by Charlie Arnold on Jun 18, 2013 12:05:32 GMT
Hi E's Mum, sorry this thread has gone a bit erratic as sadly a former member deleted all her posts and so it may not make sense, but definately hypoglycemia is still a big problem with these sugar malabsorptions. My daughter is due to have a continual glucose monitor fitted for 5 days next week hopefully as well as a sucrose challenge and full blood and urine work up so hopefully we may have more answers for everyone. Its amazing how quickly they can change temperament isn't it with low blood sugar, my ten year old goes into major screaming tantrums a 2 year old would be proud to produce when she has what I am sure are blood sugar crashes. Milk usually picks her up quickly but yes, I always carry glucose powder around with me too and follow it with milk or some other protein as soon as I can. We don't get sweet tarts here in England and the dextrose tablets make her react. If you only use glucose then you risk a yo-yo blood sugar effect. How is your daughter finding the diet, is she HFI or FM, there is another board www.hfiinfo.proboards.com for Hereditatry Fructose Intolerance if you need any ideas on completely fructose free diet. Nice to meet you Charlie |
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Post by justme66 on May 12, 2021 18:14:19 GMT
Don't know if anyone is still following this but I have had hypoglycemia, first discovered when I was about 21 with many of the symptoms you described. A very good doctor found it and sent me to a dietician who put me on a high-protein, low carbohydrate diet. It changed my whole world for the better. Basically it was pure foods (not processed, which contain sugars, salts and other garbage), three-meals a day no exceptions and high-protein snacks in between. The body needs some carbohydrates to function properly, but basically a healthy, protein-rich diet of quality foods eliminated all my problems.
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