Symptoms improving?

[Charlie Arnold]

I'm not getting too excited yet there could be many factors like we have just had a really sunny spell but I do think Meg is better off wheat, I've just realised she hasn't been complaining of feeling sick for a while. I have stopped oranges and tomato too but she only recently started those but I do think she is more on the ball than she has been for a long time. Maybe that was the last step needed, fingers crossed.

[FMmom]

I've found it so difficult to eliminate wheat completely. Now, I know if Kaelin had celiac I would find a way... I think my problem with it is that there are so many things she cannot eat and I grow so weary of always saying no.

And sometimes, no matter how much I plan, things go awry. I took my kids out for Chinese food, knowing that there is plenty of white rice to fill her up -- and then the waiter brought a big bowl of brown rice and announced "we substituted brown rice because our rice cooker isn't working." Not really following the logic of that, but NOOOOOOO! It turned into a big deal, somehow. Another waitress got involved, the manager had to come over -- and I had to get Kaelin a meal with rice sticks, but it had a sauce that obviously had something that should have been banned from her diet. Then last night we ate at our most loved restaurant that actually stocks items specifically for Kaelin and her crazy diet -- but they ran out of white rice and their freezer broke so they don't have her special brand of ice cream for dessert. So she ate things with wheat and had potatoes. It was not pretty... Arrrggghhh!

That is so terrific that Meg feels better! I think that is the secret -- once things clear up to the point that she feels better, she won't want to go back to the foods that make her feel ill. She will make the right choices. I'm keeping my fingers crossed for her continued success!!!

[Charlie Arnold]

Oh, tell me about it, eating out is a nightmare. The poor kids must get so self conscious about it.
The best story we had was when we went to the O2 in London to see Ice skating show and I carefully researched online first where we could eat incase I had to pack food. This was when Meg was on HFI diet so no sugar, fruit or veg. I found an american diner that did Jacket potatoes which were always a good option for her. Yes, they said, they could definately do her one on the phone so off we set in the morning with a few packed up snacks and arrived, had to wait 50 minutes for a table, came back, ordered and guess what - they had run out of jacket potatoes. the only safe thing on the menu was a fried egg so she had 2 of those ( tho now not sure they are good for her ), And they charged us £3.99 for them and gave us a customer satisfaction survey!!!!! I think not!!!!

I'm hoping as her system settles that she will be able to break the diet occasionally if such a thing happens again as it really spoils going out.

As for eliminating wheat - I would stick at it, its not so much celiac where they can't have the gluten but the fructans in it. As I said I do think it is helping Meg, although I won't get too excited until half way through winter and she still good as things always go wrong after October. If it makes the difference and keeps them healthy then it is so worth the battling. I cook alot of stuff at home which is a real pain as I run my own business too but it is the only way to keep her healthy.

I'll post my bread recipe, it seems to be working well, tasty and is actually easy and quick to make as it doesn't need kneading like normal bread. Then make loads and use it for breadcrumbs for home made nuggets, fish fingers etc. Once you get into the routine of it it becomes easier and easier.